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Research

Study Title:

Increasing Organ Donation in the North West South Asian Community through Strategic Intervention

 Aim

This study uses a mixed research methodology to explore the effectiveness of pilot interventions to increase the number of registered organ donors and cadaver organ retrieval within the South Asian community in the North West of England.

 Methods

Phase one administers a survey translated in three key languages (Urdu, Hindi and Bengali), throughout the region to members of the South Asian community (>500), to capture perceptions/attitudes towards organ donation. Descriptive statistics and logistic regression will be used to explore differences across ethnicity and characteristics according to age, gender, and level of education. This baseline will inform phase two, where three pilot intervention strategies are tested and measured to increase organ donor recruitment.

  • Intervention 1: South Asian patients will be recruited to the organ donor register by their GP over a 12-month period. Five GP study practices (50 GPs) will be selected and recruited, with a high South Asian patient population. GPs will be invited to an education session to develop understanding of organ donation, how to register a patient, information a donor requires, and identifying suitable patients. Organ donors recruited through GPs will be identified on the organ donor register by a specific form tracked to the specific intervention, newly registered South Asian donors will be measured and compared with baseline data. Individuals’ that declined to register as organ donors will be followed up using interviews (20) to generate a deeper understanding of their perceptions towards organ donation, exposed through thematic analysis of interview transcripts.
  •  Intervention 2: Education of ICU clinicians and Specialist Nurses in Organ Donation to develop skills and confidence of clinicians to approach South Asian families for cadaver organ donation. Ten ICU sites will be identified within highly populated South Asian areas, and five multi-professionals will be recruited within each site and invited to attend an education workshop. Religious leaders and peer–educators will explain cultural and religious beliefs that may influence donation and identify a ‘best practice’ approach for potential Asian donor families. The number of South Asian cadaver organs retrieved during a 12-month period across the ICU sites will be measured and compared with baseline data.
  • Intervention 3: A South Asian peer-education team will deliver outreach education sessions to encourage organ donation within the South Asian community, supported by appropriate information and media campaign (using Asian publications/press and radio). Relevant community groups will be identified and accessed with the permission and support of religious and community leaders. Organ donors recruited through peer-education will be identified on the organ donor register by a specific form tracked to the specific intervention, newly registered South Asian donors will be measured and compared with baseline data.

 Conclusion

This study extends current research undertaken and measures the impact of different interventions to provide intelligence and a deeper understanding of the South Asian community in the North West of England. In collaboration with the National Health Service Blood & Transplant (NHSBT) organisation the findings will directly inform a national strategy for sustained organ donation from the South Asian community to commensurate with their population footprint.

 

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