Please click the link below, watch and share the desperate need of raising awareness on Asian organ donors..
Great team spirit FOBMA, to save our organ failed patients and their familie.www.southasianorgandonor.org.u
Another successful day on 31/5/2014 at Charity Food Fest organised by the St. Mary’s Orthodox Church. Registered 40 new organ donors and 39 Stem cell donors to the national register. When we work together we can save more Lives. Thank you all. Special thanks to the organising committee for giving us the opportunity. With out the support from our dedicated volunteers Seema Jiju, Jainamma Chechi and Jaya Sudhir we would not achieve this. Thank you all and keep up the good work. at Charity Food Fest organised by the St. Mary’s Orthodox Church. Registered 40 new organ donors and 39 Stem cell donors to the national register. When we work together we can save more Lives. Thank you all. Special thanks to the organising committee for giving us the opportunity. With out the support from our dedicated volunteers Seema Jiju, Jainamma Chechi and Jaya Sudhir we would not achieve this. Thank you all and keep up the good work.
Great success!!!Organ and stem cell donor campaign during FOBMA cricket tournament on 19/05/2014. My sincere thanks to the team. Special thanks to Tomchettan, Abrahamchettan, Ajimon and Sabu. Also heartfelt thanks to Seema Jiju and Vincent for helping with campaign and transport. Very productive day, managed to register around 75 new donors on the organ and stem cell register. Your support and willingness to join the register is our future promise. This selfless action creates a great platform for all of us to reflect on our personal life and realise that life is too short to worry about our little life. We need to care for our brothers and sisters too. This is, high time to rethink and make a decision on; when we leave this world do we leave our organs to be used by our fellow humans or to worms and fire??? Can we lead a peaceful life ignoring our organ failed and blood cancer victims struggles and struggles. Thank you all for your continuous support…www.southasianorgandonor.org.uk
A Bradford mother says she was ‘brought to tears’ after being told her seven-year-old daughter would finally receive a much needed kidney transplant, after a matching donor was found.Moms Little seven-year-old Zayna Fatima Iqbal had been on the kidney transplant list since May 2013 after going into renal failure seven months prior due to a condition called Focal segmental Glomerulosclerosis (FSGS).
Since then, the youngster’s family has been appealing for donors to come forward who had the ‘power to save Zayna’s life’ and finally, last month, a match was found.
Ultimately it was the donation of a kidney, from a deceased organ donor that was successfully given to Zayna, who is now recovering well in Leeds General Infirmary.
Now, her mother, Najmah, recalls the moment she was told that a match had finally be found for her daughter and the mixture of emotions that ‘overcame’ her.
“I will always remember it,” she said. “I got the phone call on the 14th November and I was just brought to tears. The time had finally come for Zayna; a match had finally been found and it was all just surreal.
“You begin to think that the time is never going to come but thankfully it did. We got to hospital and the whole day was like a dream really. It is unbelievable.”
With no need for dialysis any more, she has began to regain her appetite for the first time in over a year, and her mother says she is ‘getting back to the old Zayna’ She said: “When you hand her over to the anesthetist and the surgeons, all we can do then is pray for her. We did know she was in good hands.
“From consultants to registrars, and sisters to staff nurses, all the staff here have been amazing. Their attentiveness and caring nature during Zayna’s transplant will never be forgotten and we would like to thank them from the bottom of our hearts.”
Zayna’s surgery came just one week before Najmah herself was due to undertake a renogram to see if she was a match for her daughter.
However, following the passing of the unnamed organ donor, the scan was cancelled. Najmah, and husband Iqbal, would now like to pass on their thanks to the family of the donor who will ‘always be in the family’s prayers’.
“When Zayna was in surgery it hit me that someone else has lost a loved one today and part of them now is waiting to give my daughter the gift of life,” Najmah said, “they were in my thoughts and it just brought me to more tears.
“Words cannot express the thanks we obviously feel towards this person and their family. I don’t know who it is but we have contacted them and hopefully it brings them some comfort to know that Zayna is well and that part of their loved one has helped save my little girl’s life.”
She added: “It is a gift you cannot thank enough for, to give that gift of life is amazing. They know that their loved one may be gone but they live on.”
Call for more BME organ donors in Bristol
25 April 2014 Last updated at 14:41 BST
A Bristol woman who has been waiting for a kidney for 11 years is calling for more Asian and Afro-Caribbeans to donate an organ to a stranger.
NHS Blood and Transplant figures show 30% of patients waiting for an organ transplant in the city are from the black and minority ethnic community.
Maureen Roland said she was starting to get complications with her treatment and doctors were running out of places to connect up to the dialysis machine.
“I don’t know how much longer this machine will keep me alive,” she added.
It follows a campaign by the city’s first Muslim ceremonial lord mayor, Councillor Faruk Choudhury, started last year.
He is trying to get as many people as possible from the black and minority ethnic community to sign-up to become an organ donor.
Naqeeb making brave decision.
My name is Naqeeb Ahmed Qureshi and I am from Pakistan. I just come to this country last year, and here it was diagnosed that my mother has CKD stage 5 kidney disease and I am very, very upset because after this discovery my mother admitted many times to hospital because of different reasons like vomiting, shortage of blood and many, many others. She bear all this with very patience, and then I decided that I should give my kidney to my mother so that she can also live normally and enjoy the life as other did. Then with Salford Royal Renal Team I done all the tests and be ready for it. My brother also want to do but I don’t allow him because I said I want to do first and then we get operation on 13th September 2013.
Naqeeb and his Mum Gul Rana both doing well at home
The reason for telling my story is not show how generous and brave I am, I just want that other people should also come forward as a live donor to their friends relatives and family members because I seen very closely how the patient suffer from this disease and what level of pain they feel on dialysis. So it’s my heart request that any one who read this please come forward so that we can face this disease.
In the end I want thanks especially Dr. Rosie Donne, Dr Smeeta Sinha and all the members of renal team in Salford Royal and in MRI for their efforts and very, very huge thanks to Mr. Afshin Tavakoli and his team for doing a fantastic operation.
Dear Friends, Please read the article by John (one of our Transplant Recipient) . This will explain to you why it is important to join the organ donor register http://gmkin.org.uk/the-gift-of-life-2/
Please read the article if your time permits and spread the Gift of Life message “Accept Life, Give Life and Live Life…
“THE GIFT OF LIFE” only four little words but very emotive words that have a great deal of meaning to prospective organ donors and recipients alike. Firstly for the donors, it is a pledge to donate their organs after death to desperately ill patients who themselves without this gift are quite likely to die also it is for live donors, related and unrelated, to offer this gift as well but whatever the decision that is taken, it will always be on a voluntary basis, no coersion, laws or threats should ever be made. I believe in the U.K we urgently need more organ donations for desperately sick people, approximately 4000.
It is often asked, would you donate an organ and the answer is no, but if you or one of your loved ones needed a transplant, would you refuse to accept an organ transplant in all honesty? After all when we are dead we are either buried in the ground or cremated. No matter what colour, race, creed or religion, we all have to die at some time, some sadly earlier than wished. When we donate our organs the person who is the donor in some small way lives on in the recipient. I know this because on December 6th 1991 at Manchester Royal Infirmary a truly amazing donor and his or her amazing family gave me the Gift of Life in the manner that allowed me to have a kidney transplant and this coming December 6th 2011 I have had my kidney for 20 years. My donor and his or her family will always be in my heart and thoughts until my dying day. In the past 20 years I have done so much. I celebrated my 48th wedding anniversary on 21st September 2011. I have been with my wonderful wife, Norine for 50 years, my two children have grown up and lived their lives, I have 3 lovely granddaughters and a lovely grandson. I have travelled with my wife to many countries in the world including Dubai and Mauritius and made many new friends in these different places. A year after my transplant I took up the martial art Aikido and para-sailing at 1000 feet, this I was doing at the age of 70 years old. I have tried to live my life to the full, I feel anything seems possible and positive. All of this is down to my wonderful donor without whom my life would have been so very different.
In 1958/60 I was a combat medic in the Royal Army Medical Corp in the Persian Gulf, Aden and Yemen. After I left the Army I worked as a Chief Operating Theatre Technician in the Royal Liverpool Childrens Hospital from 1962 to 1967 then I went into surgical sales. I went back into the medical profession at the age of 60 and re-qualified as a senior operating department practitioner at Manchester Royal Infirmary theatres and I used to work as part of the transplant team on many occasions. It was the death of my sister Sandra that inspired me to go back to work in hospitals. I retired from Manchester Royal Infirmary at 65 but continued to work until I was nearly 69 as a locum Senior Operating Department Practitioner in many hospitals in the Greater Manchester Area. I even worked at St Mary’s Hospital in the Central Delivery Unit Theatres and helped as part of the team to deliver 60 babies into the world which is one of the proudest moments in my life. I have worked in every field of surgery on the Anaesthetic team.
In 1978 I found out I had Polycystic Kidney Disease which is a genetic renal disease which killed my dear Mum at the age of 50 years and my youngest sister Sandra at 53 years. My youngest brother Keith had a kidney transplant in Liverpool approximately 15 years ago. The Gift of Life is so very important to me as at this moment in time my own very dear Son John who also has the Polycystic Kidney Disease now needs a kidney transplant in the very near future, possibly a few months as his renal function is only 17% also his eldest daughter who is 20 also has the disease but at the moment she is enjoying her life in Australia for a year. My wonderful and brave wife Norine and equally wonderful brave daughter, Belinda, are being tested to see if they can give John the gift as a related live donor but only one of them will need to donate.
In the U.K we need to educate prospective donors, whether they be cadaver or live donor, that many seriously sick patients desperately need these organs to survive especially children who need this gift of life. There are so many improvements these days in organ donor transplants and the success rates are truly amazing, it is just the shortage of donors which is the problem and mis-information bantered about. In most of Europe the opt-out system is very successful, our government needs to look at this problem again. I am one of Manchester Royal Infirmary’s success stories. I may not be financially rich but I feel like a very lucky lottery winner with my kidney.
What made me sit down at last to write about this was that I read an article in the Manchester Evening News on 28th October 2011 about the wonderful inspirational young lady who had promoted 20,000 people to add their names to the organ donor list, Rachael Wakefield of Dukinfield who at the young age of 23 years died on Thursday 27th October 2011 after having a double lung transplant just over one-and-a-half years ago at Wythenshawe Hospital. Even in death she is still an inspiration.
A huge thank you again to my donor family for your loved one’s gift, my thoughts and my gratitude are with you this coming 6th December 2011 as it is the 20th anniversary of the death of your loved one.
Post Script and update, 18th December 2012.
Another year has gone by since I first wrote this article and I have now had my new kidney 21 years, and
To give even more joy my very brave and wonderful wife, Norine, donated one of her kidneys to our son
John on the 7th June 2012 at Manchester Royal Infirmary, in my estimation my admiration for all of the Renal Transplant Team grows and grows. Also my admiration for our daughter, Belinda is also relevant as she “Stepped up to the line and volunteered to donate one of her kidneys if needed.
On the 14th December , I received the news that I had prostate cancer, thankfully it is treatable, so what the heck another challenge to face and beat.
Kidney transplant patient: ‘ I’d like to see organ donation being talked about more openly’
Jay Patel and his wife Jaysanti
A petrol station owner has been given a new lease of life thanks to a kidney transplant.
Jay Patel, 60, is a well-known face around the Vale of Glamorgan in south Wales, having been the owner of Downs Filling Station, Cowbridge for over 30 years.
People who know him well will be aware of his recent health issues.
Having been diagnosed with a kidney cyst in 2004, Jay developed kidney problems that required treatment by dialysis.
Three times a week, every week, Jay would attend the University Hospital of Wales for his four-hour-long dialysis sessions. It was tough going.
In August 2011, after more than five years on the transplant waiting list, Jay received the news that a kidney, which was a good match, had been found for him. Jay said, “ It was fantastic. I’d been in poor health for many years and was so pleased that I was going to receive a new kidney.
“I feel really blessed and grateful. It’s made a huge difference to my life.”
Raised in Uganda, Jay came to Wales with his family in 1973 when he was 19 years old, as a result of the expulsion of Asians under the dictatorship of Idi Amin the previous August.
They came to Cardiff and took over the filling station business some seven years later. In 1978, and arranged by family in India, Jay married Jaysanti. She joined him in Cowbridge some two years later.
Jay is well aware of the shortage of black and minority ethnic organ donors.
Jay’s new kidney in actual fact came from a white male, whose family chose to remain anonymous.
He comments, “There’s nothing in the Hindu religion that prevents people from donating organs, or in any other religion for that matter.
“My wife was willing to give me one of her kidneys, but she wasn’t a suitable match for me.
“I think people’s unwillingness to donate is due to misguided concerns about the after-life. I can’t agree with that and think you need to focus on the life you have now.
“A lot of people in Wales and the UK are suffering, needing new organs. I’m glad the Welsh Government is bringing in a new organ donation law.
“More needs to be done, especially within the ethnic community, to raise awareness of organ donation and encourage people to support donation. I’d like to see organ donation being talked about more openly.
“Cancer was once taboo but public attitudes have been changed over recent years. I’d like to see that happen for organ donation.”
In less than two years time, new organ donation legislation will come into force in Wales on 1 December 2015.
It is hoped the changes will help create the conditions for an increase in the number of organ donors through the introduction of a soft opt-out system for consent.
Under the new system you will be able to be a donor by either registering a decision to opt in or by doing nothing at all, in which case your consent may be deemed.
By doing nothing it will be as if you have no objection to being a donor and you will be treated in the same way as if you had chosen to be a donor.
If you don’t want to be a donor you will also be able to register a decision to opt-out.
For more information you can visit www.southasianorgandonor.org.uk