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People’s experiences

Dr Tony Akbar

Dr Tony Akbar gave his kidney to inspire more donors.

I know that patients go through so much trouble, especially people on dialysis. It is not only stressful but painful. The average wait is three or four years for one patient. It not only affects them but their relatives as well.

At first my family asked ‘why are you doing this?’, but once they got over it, they were very supportive. I wasn’t scared. I think because I am a doctor and I have been a surgeon that was the reason. Being a physician, I felt I should be a role model. I wanted to promote it to other people as well.

After the operation the kidney left behind enlarges. Obviously you become more careful about your health and you drink a little less liquid, but that’s it.
More on his activity to support organ donation.

 

 Wajid Iqbal

Not enough people from the South Asian community are signed up to the organ donor register, even though they’re three times more likely to need a transplant than someone who’s white. Thousands of people out there are waiting for a transplant and are quite unwell. If you sign the register and tell your family of your wishes, you’ll make a real difference to humanity and that’s the best gift you can give.

From personal experience as I have had a kidney transplant in the past I know the importance and the difference it made to my life, it was for the first time I knew what it actually meant to feel healthy and well. I believe that our communities need to be educated about organ donation and make them aware of how Asian people are having to wait longer and suffer through ill health due to very few people being willing to go on the Organ Donor Register and be part of such a noble cause.

Coun Mulla and wife Sayeeda

The wife of a Blackburn councillor has undergone a life-saving kidney transplant after a donor was found following a six-year wait.

“I have been appealing to the Muslim community to come forward as donors. When my wife is better I will continue to work with the key associations in order to encourage more people to donate their organs.”

 

 

Agimol Pradeep – researcher

Most patients with renal failure consider kidney transplant to be the best treatment option and research evidence (add link to information page) supports this view.
People from within the Asian community are three to four times more likely than the general population to require an organ transplant, but unfortunately due to the negative beliefs and misinterpretation, there is scarcity of organ donors from within the Asian community. Transplants are more successful if the donors originate from the same ethnic group.

Local evidence from within the Renal Transplant Unit at Manchester Royal Infirmary indicates that between 2005-2010 15.1% people who received a kidney transplant were from an Asian background. However, during the same period there were only 1.7% of donors that came forward from Asian community compared to 96.2% of donors from white communities. Currently there are 16.9% of people on the waiting list at Manchester waiting for a kidney transplant from an Asian background, so the demand for Asian donor kidneys is high.

We hope to develop interventions that will help educate and inform people within the South Asian community of the benefits of kidney donation, and encourage people to join the donor register, in addition to discussing with their families the need to be a kidney donor. We have provided information throughout this website so please take the time to read it. We have also designed a discussion forum so you can post questions that would like answering or comments regarding the research, including ideas or events and groups within your community that we could come to speak to, or provide additional information for. If you are willing to join the register please click the link.

 

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